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NYC should light up in teal for International Long COVID Awareness Day! Join our Petition!

March 15 is International Long COVID Awareness Day. NYC was an early pandemic epicenter, and countless New Yorkers now face Long COVID without FDA-approved treatments or diagnostic biomarkers. We wrote to NYC Mayor Zohran Mamdani asking NYC to join Los Angeles and other cities around the world in recognizing Long COVID as a historic struggle. We want New York City Hall to light up in teal on March 15 in observance of Long COVID Awareness Day. We created a petition for everyone to join our action. You can also additionally send a personal note directly to Mayor Mamdani. The recognition is a needed step to offer visibility and hope to New Yorkers and millions of others living with Long COVID globally.

Sign Petition    Send a personal note to NYC.GOV

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Long COVID Defense Series III featuring 6 Virtual Q&A Sessions

March 4, 2026, 4:30pm - 9:00pm EST

Join Long COVID Defense Series III to honor patients and their allies who are tirelessly advocating for health justice in this historic struggle. On March 4, 2026, 4:30pm-9:00pm EST, 6 Q&A sessions will feature an extraordinary international panel of speakers. Registration is now open. 

4:30 pm Dr. Michael Hoerger gives opening remarks

4:35 pm Delphine Crespo, President of Association of Long COVID Aragón

5:10 pm Dr. Ciara Steele, co-founder of Clean Air Advocacy Ireland (CAAI) 

5:45 pm Elisa Perego, PhD, Long COVID Rise Up expert member who coined the term Long COVlD 

6:20 pm Pamela MorrisonLong COVID Advocacy Ireland

6:55 pm Angela L., Creator of International Long COVID Awareness Day

7:35 pm Devin Russell, Founder of Long COVID Foundation

8:15 pm Paul Hennessy (Organizer of the 2024 Long COVID Demonstration in Washington DC) gives closing remarks

With patients in our network sharing their lived experiences, and with researchers sharing their findings, our pandemic documentary project is revealing that Long COVID is a multisystemic condition that affects all organ systems, potentially due to organ damagevascular dysfunctionviral persistenceneurological dysfunctionmitochondrial dysfunction, metabolic dysfunctionimmune dysfunctionautoimmunity, chronic inflammationgut dysbiosismast cell dysfunction, and latent viral reactivation.

Long COVID patients struggle with all kinds of diagnosable and less diagnosable conditions induced by COVID: diabetes (Type 1 & 2), fatty liver, smell and taste disorder [3][4], chronic eye issues [5][6][7], blood clots, cardiovascular disease, lung conditions such as asthma, hyperlipidemia (high cholesterol), autoimmune disordersreactivation of latent viruses and dormant cancer cellsneurodegenerative disease, hair loss (alopecia), voice lossoral conditionssleep disordersallergies, and impaired cognition, just to name a few.

Long COVID patients can be living with organ damage to their heart [8][9][10], lungsdigestive systembrainkidneysliverpancreas and reproductive system [11] [12]. 

COVID can also trigger hard-to-diagnose conditions such as postural orthostatic tachycardia syndrome (POTS), in which patients often suffer from orthostatic intolerance, causing Tachycardia and dizziness when you transition from sitting or lying down to standing up. 

Some Long COVID patients develop post-exertional malaise (PEM), which often leaves them bed-bound. PEM is also seen in other conditions, including ME/CFSlupus and cancerME/CFS is a commonly self-reported cluster of symptoms that waxes and wanes. A 2025 NIH-funded study that excluded hospitalized patients finds that 4.5% of post-COVID-19 participants, mostly from the Omicron era, met ME/CFS diagnostic criteria.

systematic review and meta-analysis of 429 studies (2021–2024) found a 36% pooled global prevalence of long COVID among SARS-CoV-2-positive individuals, confirming that roughly one-third of people experience persistent symptoms. The review explores the prevalence of 8 subtypes and 41 symptoms, and the 11 most common risk factors. The subtypes include respiratory (20%), neurological (16%), cardiovascular (10%), musculoskeletal (9%), gastrointestinal (5%), psychological (18%), dermatological (12%), and general fatigue (20%). The findings show that significant burden remains high, with studies indicating that prevalence actually appears higher (47%) 1–2 years post-infection compared to under 1 year (35%).

Each infection of SARS-CoV-2 can trigger onset or relapse of these conditions that can shorten a person’s life. Despite how data is being suppressed, Long COVID is causing deaths. However, the government is not rapidly testing existing medications to target different Long COVID etiologies. We have yet to see any research on distinctive biomarkers being developed for different etiologies. There’s no unified inclusive research index, nor diagnostic criteria for clinicians. Research studies generally exclude patients with comorbidities, missing crucial information on how COVID exacerbates all kinds of medical conditions. RECOVER has been using an 11-point scoring system on 12 symptoms to identify patients. The research index over-weighed PEM and loss of taste and smell, excluding those that don’t meet the criteria, most likely patients from the Omicron era. Many Long COVID conditions that involve organ or immunological dysfunctions don’t show many symptoms but can only be detected by blood profile. 

Long COVID patients, unable to be diagnosed with Long COVID, often struggle with stigma, or being accused of psychosomatizing. Their losses in function and quality of life are dismissed as “normal aging” or stress-induced. Primary physicians are mostly untrained to diagnose Long COVID. Because of heterogenic manifestations that affect multiple organ systems, patients are often sent to see multiple specialists who might also be uneducated about Long COVID. RECOVER studies on long-term symptom trajectories indicate that for a significant subset of patients, Long COVID symptoms can progress overtime, and symptoms worsen over time in some patients. Long COVID specialists at a Long COVID clinic are trained to diagnose patients with Long COVID, but 80% of these clinics have shuttered due to lack of funding, providers and approved treatments. 

Long COVID Defense Series was launched in November 2025 to fight erasure of Long COVID. MaskTogetherAmerica is dedicated to supporting patients especially those who cannot recover from an infection or multiple infection of COVID-19. We hope our educational campaign will arm patients with knowledge to address their health decline. We hope meeting other patients will help renew your stamina to seek diagnosis and targeted treatments, instead of self-deprecation. “It’s not because of your age. It’s Long COVID.” 

We hope our forum will encourage research that targets multiple etiologies and lead to creation of targeted biomarkers for each pathway. We need funding for research and Long COVID clinics. We hope that our effort will increase grassroots activism! 

Hundreds of millions of people suffer from Long COVID worldwide. Long COVID is a top-ranking chronic illness among children. Indoor air quality needs to follow ASHRAE standards 241, the minimum requirements in reducing exposure to infectious aerosols in buildings by combining ventilation, filtration, and air cleaning. In addition, immunization, N95 respirators, and sick leave are essential preventive strategies to protect communities. We hope our forum will fuel the movement that empower people to support public health by advocating for preventive measures together. When we work together, we can make changes happen.

Access Info:

  • Format: 6 Q&A sessions
  • Presentations will be in spoken English
  • Chat will be open
  • Camera off for guests for security reasons
  • Recording will be edited and available on the website through Youtube and Facebook

Register to join    Submit your questions

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Debunking Disinformation: The Telegraph Sows Misunderstood Science Amidst Deadly Winter Viral Wave

—Dr. Allen Haddrell teamed up with MaskTogetherAmerica

By Julie Lam

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Influenza (flu), respiratory syncytial virus (RSV), and COVID-19 are contributing to a significant number of illnesses, hospitalizations, and deaths this season (2025-2026) in the U.S. and globally, with a notably severe flu season. Instead of supporting public health organizations to promote prevention and infection control, The Telegraph reporter Mattha Busby cooked up right-wing propaganda to stigmatize usage of high filtration masks that experts recommend as a preventive measure. Busby mocked MaskTogetherAmerica’s diverse community of advocates – dominated by people with medical conditions and disabilities, and their allies, calling them ‘zero COVID zealots.’

“The Telegraph article is a poorly written hit piece that misrepresents science to attack a marginalized group. It’s disgusting,” Dr. Allen Haddrell told Julie Lam, founder of MaskTogetherAmerica, who is immunodeficient. Dr. Haddrell is an aerosol scientist who studies aerosol toxicity and pharmacology at University of Bristol. Busby, the journalist who wrote the article, interviewed Julie Lam and added Lam’s masked image to a collage, the article’s main visual, but didn’t include her story—likely because her years of struggles with Long COVID would have contradicted Busby’s penchant for ridicule. People who independently protect their health and work to reduce their own exposure to viral infection should not be subject to mockery. Despite her chronic illness, Lam masked up and travelled from New York City to Bristol to interview Dr. Haddrell in order to write a rebuttal of Busby’s misusing science in such an unproductive fashion. Science being misrepresented or weaponized by Busby shows most obviously, and tragically, his minimization of SARS-CoV-2, the virus that has taken over 7 million lives worldwide.

Focusing clearly on science pays off and provides preventive information that should not be discounted or diminished. In 2023, Dr. Haddrell published a laboratory study on viral decay rates of early COVID variants, which suggested that 95% of SARS-CoV-2 gets inactivated in an hour. Busby, without consulting the researcher, misreported: “A Royal Society journal indicated that short-range transmission was indeed the prime cause of COVID’s spread, but that viral particles could become inactive within an hour airborne.” Dr. Haddrell, who wears masks and takes precautions seriously, especially since he works in a BSL-3 Lab, was outraged by the misinterpretation of his research findings, and argued that an hour is a long time for deadly COVID-19 to be airborne! In other words, an airborne virus is living for a long time and sowing a lot of infections in an hour.

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An excerpt from the Telegraph article: https://yhoo.it/4qQok7q

In the U.S., CDC researchers estimated that Omicron variants killed 101,300 people between 2022 and 2023 and 100,800 people between 2023 and 2024, based on undercounted data. Dr. Haddrell’s lab studies also showed that Omicron is 1.7 times more aerostable than the Delta variant. Haddrell’s follow-up study, published in 2024, revealed that poor ventilation (≥ 800ppm in CO2 level) helps viruses remain infectious for much longer, which explains why superspreading happens in a crowded room. To consider one well-publicized example, at the Gridiron Dinner in 2022, during the first Omicron wave, 72 out of the hundreds of fully vaccinated guests tested positive.

“Because the Telegraph article is so poorly written, it is unclear exactly what the author is getting at when it comes to our research (the Royal Society article). It claimed that our research showed that the virus is 100% inactivated in the air in about an hour. We did not report that. No one has reported that. They say that we showed that “short-range transmission was indeed the prime cause of COVID’s spread.” We did not show that, because we did not measure transmission. We measured how long the virus was viable in the air. People can use the data we provide to interpret disease transmission studies, but that is something else entirely.” Perhaps Busby’s error relates to an inability to understand the scientific difference between viability and transmission, but writers and reporters do have a responsibility to demonstrate competence as they report. Furthermore, a foundational principle of ethical journalism is that a reporter must fact-check their work thoroughly. Verifying information, especially on a lifesaving mitigation tool, before publication, can avoid irreparable damage far beyond losing readers’ trust – it can also prevent individuals losing their health, or worse, their lives.

Busby’s “worldview-shifting science” against masking also included the controversial Cochrane mask study. The Cochrane study suggests that the analysis of some randomised controlled trials (RCTs) “sort-of suggests” that using surgical masks makes little or no difference, compared to braving crowds with faces uncovered. However, researchers have specified that the quality of the individual studies varied greatly, with high risk of bias, different study designs, and the fact that “adherence with interventions was low in many studies.” The review assessed policy measures to promote mask-wearing rather than the effectiveness of consistent mask-wearing at an individual level. Many of the research studies focused on seasonal flu data, which is less relevant to a year-round airborne virus like SARS-CoV-2 (COVID-19). On the claim that N95 respirators are probably no different than surgical masks, they also clarified that “evidence is limited by imprecision and heterogeneity for these subjective outcomes.” The study concluded that the evidence from the analysed trials was "inconclusive" as to whether promoting mask-wearing interventions helped slow the spread of respiratory viruses.

“Coupling our work to the controversial Cochrane mask study implies that the two are reporting that masks are ineffective. This is simply not true. In our article, we make it clear that masking is indeed incredibly important for mitigating spread. We also make it explicitly clear that even though the decay rates are slightly faster than originally reported, the virus remains viable in the air for a long enough time.” Dr. Haddrell points to a section in the article that Busby cites.

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The Royal Society article actually promotes mask usage! In Dr. Haddrell’s lab, it is mandatory to wear a mask. Researchers also wear other personal protective equipment, including latex gloves (doubled, as in two gloves for each hand), and lab coats.

“To work in a high containment lab, safety is paramount. Airborne transmission from the experiment is minimized by the use of both the flexible film isolator and the design of the CELEBS (Controlled Electrodynamic Levitation and Extraction of Bioaerosol onto a Substrate) instrument. Thus, the greatest risk in our work would come from the handling of the sample, followed by inadvertently/accidentally touching one’s face. The masks protect from that. In general, BSL-3 labs require masking because the users are surrounded by a high concentration of a transmissible disease. In such an environment, masking is critical as they dramatically lower any and all exposure.”

In addition to masking, Dr. Haddrell also keeps the air quality of his high containment lab at a high standard.

“The air in the aerobiology lab is exchanged at a tremendous rate. It’s typically around 10 -12 ACH (Air Changes per Hour), but can be as high as 20. Fresh air brought into the lab is HEPA-filtered. Collectively, this means that the air in the lab is extraordinarily clean.” Dr. Haddrell also added that experiments are undertaken within a levitation chamber, which itself is placed in a large plastic bag with sleeves (see photo). This physically protects the user from the virus sample— a unique safety feature of their lab.

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Fair and impartial reporting is a foundational principle of journalistic ethics. Busby should have verified information from multiple sources and provided context instead of deliberately distorting the facts of science and the facts of people’s stories. Busby simply reveals an unfounded personal hatred against virus mitigation.

Busby chose to attack people who wore masks that appeared to be young and physically healthy from the outside, and he excluded examples of elderly people and disabled people he had interviewed. Having learned through interviewing thousands of Long COVID patients, researchers, and medical professionals for a pandemic documentary project, Julie explained to Busby that everyone is only an infection away from becoming chronically ill or disabled.

A news organization discriminating against a minority group dominated by immunocompromised and disabled people— is shameful ableism taken to new heights. The Telegraph is notorious for publishing anti-mask rhetoric.[a] [b] However, on July 24 2020, during the first deadly wave of the pandemic, The Telegraph published a pro-mask article by Jennifer Rigby. Rigby interviewed historians to compare temporal changes on the backlash against masking. Rigby’s research included a dark historical reference that contradicts inflexible mask resistance for die-hard individual liberty— a French doctor died from refusing to mask. In the story, the masked Chinese doctor lived. 

During the interview, Busby told Julie that he never wore a mask, and he revealed his mission to use his power to intimidate mask advocates one by one. His methodology: grabbing, amassing posts from social media platforms of public figures/influencers and MaskTogetherAmerica— then branding those who put their health and community first as ‘Left-wing” and as people, who by his account, are living in fear.

Busby quotes Taylor Lorenz saying “If ur [sic] not masking ur absolutely facilitating eugenics” —to begin a section featuring celebrities joining our collective movement to end pandemic denialism. To Busby, even promoting infection control is ridiculous. Though pandemic denialism is clearly horrible, Busby is using his power to protect it. Should we call him the ‘Million COVID Zealot’?

All jokes aside, many studies have shown that wearing a mask, especially a well-fitted N95 mask [1][2][3][4][5][6], combined with HEPA filtration [7][8][9] provides valuable protection against COVID-19. ( See our research here.) Universal masking and other public health interventions during the early days of the COVID-19 pandemic likely eliminated the influenza B/Yamagata lineage. No confirmed cases of this strain have been reported worldwide since March 2020. Collective action can beat deadly viruses. Misinformation fuels infection!

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Dr. Haddrell said that airborne transmission of disease is not inevitable. “It’s something we can control. We know this from what happened with influenza B Yamagata; it disappeared due to the COVID restrictions. This is not to advocate for these restrictions all the time, but rather to identify that it is possible. We have learned a lot during the pandemic, and we have so many tools in our toolkit now that we could be using to limit airborne disease transmission. We just need to use them. Any of them.”

Julie Lam caught COVID-19 close to the end of 2021. Despite being up-to-date with vaccination, she couldn’t recover. After seeing over 30 specialists, 3 years later, she was diagnosed with Long COVID due to organ damage, sleep apnea, immune dysregulation, dysautonomia, microclots, mitochondrial dysfunction, metabolic dysfunction, and reactivation of Herpes Zoster virus a.k.a. Shingles. Dr. Haddrell caught COVID-19 in 2022. Though he doesn’t have Long COVID, he said having COVID was terrible. “Long COVID is a terrible and still poorly understood condition that affects millions. It’s the elephant in the room that no one wants to talk about, and it’s costing society a lot in terms of both healthcare costs and quality of life. The fact that it is avoidable through thoughtful mitigation strategies makes it even more tragic.”

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Long COVID Defense Series II featuring 4 Virtual Q&A Sessions

Jan 15, 2026, 5:00pm - 8:00pm EST

COVID-19  and Long COVID (LC) can be lethal. Millions of Long COVID Patients of all ages around the world are uncared for, unable to get diagnosed, and struggling to protect themselves from more infections that can exacerbate symptoms. Contrary to claims that little is known about Long COVID, the scientific community has identified several etiologies that explain why symptoms persist in individuals. Long COVID is now recognized as a complex multi-system condition, and research has progressed to identifying specific, testable causation pathways. We invite you to watch MaskTogetherAmerica Long COVID Defense Series, Part II, on Jan 15, 2026, 5:00pm - 8:00pm EST. Our virtual event featured 4 esteemed speakers: 

—Sinéad O'Brien, co-founder of Clean Air Advocacy Ireland (CAAI) 

—Akiko Iwasaki, Ph.D., Sterling Professor of Immunobiology at the Yale University School of Medicine 

—Betsy Ladyzhets and Miles W. Griffis, co-founders and editors of The Sick Times, a non-profit news site covering Long COVID and the ongoing pandemic.

Our Long COVID series is very fortunate to have this amazing panel of advocates who don’t hold back on defending health justice for long-haulers. Lack of awareness and recognition fuels gaslighting and diagnostic odysseys in Long COVID, leading to delay and lack of options in treatment – all exacerbated by age, gender, class, and racial inequalities. More than ever, the unprecedented retrenchment of U.S. public health protections/efforts, health insurance and social services—including nearly $1 trillion in impending Medicaid cuts, reduced Supplemental Nutrition Assistance Program (SNAP) benefits, the closing of 80% of Long COVID clinics in the U.S., and the end of federal support for disability outreach—has made community support vital for the survival of Long COVID patients.

Watch recording on YouTube and Facebook.

Access Info:

  • Format: 4 Q&A sessions
  • Presentations are in spoken English, auto captions allowed
  • Chat was open
  • Camera off for guests for security reasons
  • Recording was edited

YouTube    Facebook

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MaskTogetherAmerica Long COVID Defense Series I featuring 5 virtual Q&A sessions

November 7, 2025, from 5:00 to 8:30 pm Eastern

"The cumulative global incidence of Long COVID is around 400 million individuals, which is estimated to have an annual economic impact of approximately $1 trillion—equivalent to about 1% of the global economy," according to a science review published in 2024 by top Long COVID researchers in the U.S. Yet prevention of COVID-19 is viewed by most Americans as a taboo. Every day, COVID-19 is infecting people and spreading. Every infection can lead to Long COVID, which has no cure or FDA approved treatment. Regardless of severity, patients face long waits, gaslighting, dismissal, abandonment, and high costs in seeking diagnosis and experimental treatments. Every day, this global health crisis is spreading like wildfire as doctors and nurses treat the thought of Long COVID as a medical taboo and banish it from public consciousness.

Watch MaskTogetherAmerica’s first virtual forum of its Long COVID Defense Series on Friday, November 7, from 5:00 to 8:30 pm Eastern, featuring:

  • Solenn Tanguy, president of Winslow Santé Publique, a Long COVID advocacy group in France
  • Dr. Angelique Corthals, CUNY professor, multidisciplinary researcher in biomedical science and biological/forensic anthropology, and Doctors Without Borders consultant in diagnostic technology and biologics delivery
  • Adam Van Bavel, Long COVID patient activist and administrator of Maryland Indoor Air Quality Advocates (MIAQA)
  • Ann E. Wallace, Ph.D., English professor, poet, and NIH RECOVER patient representative
  • Becky Ancira Robertson, MaskTogetherAmerica founding member, Long COVID advocate, researcher and representative of the World Health Network

We are grateful to start our series of virtual forums on Long COVID with this great panel of Long COVID advocates who don’t hold back on sharing their experiences and defending health justice for long-haulers. When someone is down, we won't leave them behind, especially when so many people need a helping hand. We are going to speak out together.

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Global Long COVID Declaration

— Initiated by Patient Organizations and Advocates LIVING WITH LONG COVID All Over the World

MaskTogetherAmerica was invited by the global Long COVID patient community to support the organization of a collective declaration for Long COVID, “a vascular, chronic multisystemic condition caused by a virus that challenges medicine and public health in unprecedented ways.” If you agree with the principles presented in the Long COVID Declaration, contact us to add your name. 

The erasure of COVID-19 prompted patient organizations and advocates LIVING WITH LONG COVID and their caregivers and allies from all over the world to unite and speak up together demanding accurate representation of patients, urgent action, research, and prevention. With a long history of exposing the truth about Long COVID and supporting Long COVID patients through our educational campaign, we are grateful and honored to have the opportunities to partner with Long COVID organizations such as Winslow Santé Publique in coordinating this global effort.

It is painful for patients in the U.S. to see that our government’s Long COVID researchers coined a narrow symptom-based index in 2023, in which Long COVID is defined by a short list of symptoms instead of its multiple etiologies and phenotypes, which are essential for the development of targeted treatments and management strategies. Instead of recruiting Long COVID patients of all severities, the 11-point scoring system heavily weighs on two specific symptoms. Loss of smell or taste: 7 points. Post-exertional malaise: 6 points. If physicians are using this research index as a benchmark for diagnosis, it is likely that a majority of the population living with Long COVID is being left by the wayside, regardless of the source of the pathophysiology that leads to incurable damages of the organ systems.

It is long overdue for the world to understand how patients are overlooked, overwhelmed, and forgotten when seeking care in a stringent healthcare system that breaks a human body down into a disparate list of parts monitored by a disjointed group of specialists rather than treating the body as a complex, interconnected system. Long COVID patients are struggling to get diagnoses, and they are utterly uncared for. It is long overdue for world citizens to jointly declare that Long COVID is an umbrella term for all the onsets and relapses of chronic illnesses that follow an infection of SARS-CoV-2 and to include people that have fallen through the cracks.

Long COVID Declaration    Email the Organizers

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MaskTogetherColorado

Announcing a New Chapter: MaskTogetherColorado

On Jan 3, 2025, Dr. Maria Gillespie, an ambassador of MaskTogetherAmerica and professor at Colorado State University, joined forces with Susan Bowland, a caretaker, initiated MaskTogetherColorado, a state level chapter of MaskTogetherAmerica. Since then, the two founders brought MaskTogetherAmerica’s mission to their state, along with their team members: public health expert Fiona Gau, community activist Stephanie Williams, scientific advisor Dr. José Luis Jiménez of CU Boulder, and local engineer and fit tester Mish.  

 MaskTogetherColorado believes in ensuring widespread access to masks, vaccines, clean air, tests, telehealth, and data for the population. We hope their initiative will inspire many local groups across the country and across the world to work together with their leaders to make real change happen.  

 Follow MaskTogetherColorado on Instagram, Bluesky, or X for more information.  

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MaskTogetherAmerica Back-to-School Health Forum, Sunday, August 17, 2025

Our Back-to-School Health Forum features three Q&A sessions with highly regarded medical professionals who advocate for sickness prevention

Dr. Michael Hoerger, Program Lead for Population Sciences and Disparities, Tulane Cancer Center, MaskTogetherAmerica Advisor

3:00–4:00 pm ET COVID Defense Strategies That Don’t Abandon the High Risk Discussion

Dr. Judy Stone, Infectious-Diseases Physician, Medical Writer, Author, Researcher, Teacher, Senior Contributor — Forbes Magazine

4:15–5:15 pm ET Infectious-Disease Preventive Tools Discussion

Dr. Robi Tamargo, Psychologist, Long COVlD and Trauma Specialist, MaskTogetherAmerica Advisor

6:15–7:15pm ET Neuro Long COVID Discussion

This education forum is made for everyone who wants to protect each other from preventable infections and long-term chronic illnesses that follow infection. As we struggle with a vacuum in public-health data and guidance, we must use education to drive up support for grassroots awareness.

Watch on YouTube    Watch on Facebook

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Long COVID Health Justice Poll, March 15, 2025

The struggles for Long Haulers in getting care are real

Long COVID exposes the collapsing healthcare system in the U.S. — learning from a poll we shared on Long COVID Awareness Day. The poll was shared on Instagram, Facebook, X, Bluesky, and with Facebook Groups: COVID-19 Longhauler Advocacy Project, Survivor Corps, COVID-19 Long-Haulers Discussion Group, and our own group: Mask with Us. We received 171 responses in total. Below is the result showing the percentage of the participants who identified themselves with the six basic struggles.

1. HCW (Health Care Workers) won’t mask —39%

2. Availability (distance, delay) — 46%

3. Diagnostic obstacles — 56%

4. Treatability — 63%

5. Gaslighting — 60%

6. Cost — 54%

7. Others ( documented individually )

Our Analysis tells us that many Long COVID patients in the U.S. find their healthcare providers to be incompetent in diagnosing or treating the wide range of symptoms and conditions following an infection of SARS-CoV-2.

Victoria Coble( Founder, @covidactiongso on Instagram) wrote, “...quite frankly the gaslighting at year 5 is pretty intolerable given the vast amount of peer-reviewed literature available on both the acute phase of infection & LC.”

Getting a diagnosis for Long COVID is challenging because the requirement of PCR test proof from insurance companies makes it impossible for lots of patients to get a diagnosis or see a Long COVID specialist or join Long COVID clinics and studies.

Debbie Socolar ( on Facebook ) wrote, “One kind of diagnostic barrier some face: if you got sick before Cl9 testing was accessible, is lack of a positive test result posing a barrier to some LC care? And... are you now out of work because of LC, so don't have health coverage? So many potential obstacles to care!”

Long COVID patients also find healthcare inaccessible due to shortage of Long COVID providers and clinics, long wait times, health insurance denying coverage, and lack of infection control, especially a lack of mask requirements in healthcare facilities.

Karina Halevy( @occasionally.original on Instagram ) wrote, “I haven’t even been able to get a primary annual checkup because my hospital refused to implement N95 and HEPA protocols.”

Dr. Robi Tamargo( @drrobit on Instagram ) wrote, “In the early days, I experienced all seven. Now it’s primarily the short-term and long term $ costs associated with this disease.”

Amanda Clough( @builtfrmlove on Instagram ) wrote, “Number 1 (HCW won’t mask) is my biggest barrier to care. Are my symptoms bad enough to risk being exposed to COVID during the appointment because another infection actually would threaten my life. Beyond that it’s treatability and cost. My Long COVID specialists have resorted to sending me to the NIH RECOVER website to find my own treatment options which is wild considering 99% of RECOVER studies are observational in nature and do not offer treatments. Back in 2023 I asked to try an extended dose of Paxlovid and was denied. Last week it was finally offered to me only now my insurance no longer covers this drug and one month out of pocket will cost $12,000. Things are grim for sure.”

A research paper by U.S. top scientists on Long COVID estimated that 400 million people worldwide have experienced Long COVID. In the United States, 20 million Americans have been diagnosed with Long COVID including children and young people. Long COVID is a global health emergency.

Patients require quality healthcare to facilitate recovery, and this means access to safe and affordable services, evidence-based practices, patient-centered care, and continuity of care. But Long COVID patients face unthinkable obstacles, both physical and mental challenges, in the hostile healthcare system in the U.S. If our government truly wants to “make America healthy again,” it needs to expedite and expand Long COVID medical trials, fund research, and set infection control policies and guidance that prioritize airborne prevention.

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We invite you to read Why Mask Bans In America Could Set A Dangerous Precedent For Public Health, by Omer Awan, Forbes

As New York and Texas face threats of anti-mask legislation, Dr. Omer Awan emphasized the essential role masks play in protecting people from deadly infectious diseases and air pollution in his Forbes article. He included a quote from Julie Lam, who writes for MaskTogetherAmerica.

We’re grateful that Dr. Omer Awan has tirelessly reported on DOGE-led massive layoffs of government workers, on reckless cuts in public health and lifesaving science research, and on recent policy shifts. We're also grateful he is now exposing the dire struggles of daily mask-users in our world that’s normalizing infection instead of prevention.

A mask ban, even with a health exemption, banishes people from public life, he pointed out – for many reasons including fear of being questioned or arrested.

“Asking these individuals about masking and to potentially take it off is an invasion of their health and privacy that should be protected by HIPAA laws,” our hero wrote.

Dr. Awan talked to Julie Lam, who lost friends and her health in this pandemic, and who is taking medication that compromises her immune system. She told him why, even so, she is joining “Hands Off!” protests due to the urgent need to rally against the destruction of public health.

Masking is a symbol of love and community care, not intimidation, not hatred. High risk people have been left by the wayside in this ongoing health crisis. We cannot accept this hurtful distortion of an effective mitigation tool. A mask ban will make public spaces inaccessible to elders, disabled people and anyone who masks up for essential protection. We need laws to safeguard our autonomy to protect our health! We need to end anti-mask discrimination.

Dr. Awan wrote, “At a time where science and health have been largely politicized, America needs leaders that will fight for the well-being of all its citizens.”

We hope that his powerful article would help our urgent efforts to SAVE OUR RIGHT TO MASK!

Save Our Right to Mask!

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SAVE OUR RIGHT TO MASK!

Masking = Love + Community Care. Mask Bans are disability injustice, discrimination and violation of human rights. They will greatly harm our country’s infection control against contagious diseases!

We need a law to SAVE OUR RIGHT TO MASK!

Write to U.S. officials to ask them to prohibit mask banning and provide mitigation tools instead.

Our #StopMaskBans campaign is created by MaskTogetherAmerica and supported by 9 other cosponsors: LONG COVID Foundation, Strategies for High Impact (S4HI), Long COVID Justice, Care Not COVID Chicago, Pan End It!, Senior & Disability Action, MEAction Network, COVID Action GSO, and World Health Network.

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Clean Air Emergency: Viral Surge + Wildfire Smoke Q&A Expert Forum featuring 5 speakers

“Clean Air Emergency: Viral Surge + Wildfire Smoke,” a MaskTogetherAmerica Q&A Expert Forum on Feb 7, featured Dr. Richard Corsi, Dean of the College of Engineering at UC Davis; Liesl McConchie, expert on learning and co-author of best-selling book Brain-Based Learning; and Dustin Drury, former TV producer turned clean air advocate of Clean Air LA. The speakers discussed government regulations on building codes, free mitigation tools, clean air advocacy and building grassroots mutual aid communities – all essential to protect people from breathing unhealthy air.

Dr. Angelique Corthals, Scientific Advisor of MaskTogetherAmerica, gave an introduction. Founder Julie Lam made a special announcement about the Protect Firefighters Initiative, in response to firefighters needing PPE to keep them safer during the clean-up of the catastrophic wildfires in Los Angeles.

The initiative is cosponsored by Lam and two American Medical Manufacturers Association members– Claudio Dante, cofounder of Dentec Safety Specialists, and Eddie Phanichkul, CEO of Lutema and Vida, co-founder/V.P. of the American Medical Manufacturers Association (AMMA). This MaskTogetherAmerica initiative pledged to the LA Fire Department an in-kind donation worth over $15,000, providing highly protective elastomeric respirators with P100 Multiple Gases/Vapor Filter Cartridges. For the announcement and discussion of firefighters’ needs, the advocacy group invited the two proud members of AMMA to join the Q&A sessions, which were emceed by MaskTogetherAmerica’s Clean Air and Mask Ambassador Christina Auriana.

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